A LYME PATIENT'S JOURNEY TOWARD HEALING
This place is amazing. I can tell already that this is a place where healing happens. There are five other Lyme patients here with me in my "lyme patient cohort" and I'll be with them during the 10-days of treatment. Normally, there are 11 days of treatment, but our patient group came during Memorial Day holiday week, so they are doubling up on the therapies on the last few days. Infusio gets six new Lyme patients every week on a rotating basis. Each patient is at the clinic for 4-5 hours each day receiving various intravenous cocktails and other supportive therapies and then the final stem cell transplant at the end of treatment.
Here are scenes from this morning's view. Today's intravenous therapies include (as noted in Infusio's Lyme brochure):
Calcium EDTA - typically used to remove lead from the blood stream. However, it is known to have many benefits in optimizing the cellular terrain and helping cells rid themselves of metabolic waste and toxins.
Glutathione - naturally made by the liver, glutathione deactivates the destructive free radicals. Glutathione helps to recycle coenzyme Q10 - an enzyme found in the energy-producing mitochondria of all cells - back to full strength after it neutralizes free radicals.
Artesunate - is an antimicrobial generally used to treat malaria. However, in this context, I'm guessing we are targeting Babesia with me since Babesia is a "sister" of malaria.
Dioxychlor - Dioxychlor is a natural antimicrobial which supplies oxygen to the cells. Administered in an infusion, it may help eliminate toxins, parasites, bacteria, viruses, and yeast.
Neuro Amino Acids - This proprietary mix of amino acids is designed to support detoxification and repair of the nervous system.
I also received a thymus injection and trigger point therapy with De'Leon, the handsome 'Gladiator' massage therapist. Tasty bone broth soup, nettle tea, and green juice were also given to all patients.
Thymus injection is administered every day and plays a strong role in helping to support and restore the immune system. My bum will have to get used to that poke and sting every day! Yowzers!
We made it. I see palm trees and nice bearded travel companions. Our AirBnB for the first week is fantastic. It is located in West Hollywood on the Sunset Strip near Beverly Hills and just 4 miles from Infusio. We're on the 5th floor and have a spectacular view of the city (see below). The apartment is clean and appears to be mold-free as I don't seem to be reacting. If anyone would like information about where we are staying, please contact "The Let". I found them on AirBnB and Trip Advisor. Brandon is heading to the gym soon. For me - it's time to rest. Treatment begins in 2 days on Tuesday, May 30! Eek! I'm nervous and excited.
Tomorrow I leave for a 2-week monumental journey. I will be starting at a Lyme treatment program in Los Angeles that incorporates stem cells and I can't thank you enough for your support and help with getting me there! I am beyond nervous and excited. For those wondering, here's what's going on. I thought I would explain it all in one place:
What? Stem Cells?
Yep. Since incorporating stem cells in their program, the clinic has seen an 85% success rate with Lyme patients. 5% they don't hear from again and 10% stagnate or don't improve. Kelly Osbourne, celebrity with Lyme, also went to their clinic in Germany, and she recently spoke about how they saved her life. These are NOT embryonic stem cells which can carry a risk of cancerous tumor formation. These are adipose stem cells, or stem cells derived from a patient's own fat. There is no risk of rejection with these type of stem cells. I'll have a procedure at the end of the 2 weeks which liposuctions stem cells from my "love handle" area with two incisions in the tush area. Then, they become activated and pumped back into me via IV, where they can "go to work" and start repairing damage and rebuilding my immune system.
What Happens After the 2 Weeks?
My body will be in a healing state. The first 100 days, the stems are working hard and replicating 10 times every 10 days. This may be a period of a lot of ups and downs. Some patients start to see some improvements during this time, while others crash or have a roller coaster of symptom flares. This is normal. The stems are working hard to rebuild and the body is trying to recalibrate. During this "fragile" stem-building time, it is recommended to do anything to remain stress-free and to rest, as stress can affect how stems rebuild. After the 100 days is when the real benefits start to take place and it may take up to 1 year to see the full benefits. Some patients report not feeling a real "shift" until about month 6 or 7. If it takes me a year to get better, I don't care. When you're stuck in bed or the couch and have dizzying neuro symptoms, you'll do whatever it takes.
If you want to read more on the clinic's Lyme program, here is the link.
Big thank you to everyone for your support and to the person who donated their sky miles to get me there!
Phew. This stuff is complicated. If you have questions, please ask away. I'll be happy to try to answer. Wish me luck. I'll need the encouragement and reminders that my body will be hard at work beating this. I'm pretty nervous. I will be posting updates and pics as things progress, but not of my tush.