A LYME PATIENT'S JOURNEY TOWARD HEALING
It has been about four weeks since my last post and boy, the last few weeks have been a bit challenging. I'm at Day 55 (approximately 7-8 weeks post-stems).
I think I hit a crashing period post-stems. I was having more feel-good energy the first 3 weeks, then, BAM! Week 4 hit with pretty tough depression, weepiness, feeling very irritable and feeling like I'm jumping out of my skin with anxiety. It almost felt like I took too much thyroid hormone, but I didn't. I wasn't sure if this was just the typical "crashing" and "adjusting" phase that many patients experience post-stems, or if this could be possible build-up of the white powder supplement I was taking from the clinic to help with detox and neurotransmitters. It crossed my mind because the only two changes had been:
1. stem cell treatment and subsequent body adjustments
2. the white powder supplement.
I remember Dr. Phil saying that it could take 4-6 weeks for the powder to build up in the system and I was at 4 weeks when the strange agitation and weepiness hit. I was thinking maybe it was too much for me somehow. He also said that around Weeks 4-9 post-stem could be a time that is really tough for some people. This is because there is a lot of recalibration and changes within the body adjusting to multiplying stem cells. We were told that there could be many fluctuations in thyroid hormones, sex hormones, and neurotransmitters. Whatever the case, I weened off the white powder supplement, and those agitation symptoms disappeared. I'm not sure if it was related, but I'm glad I haven't had them since. Whoo-doggie. What a ride!
Weeks 5-7 has also brought more fatigue and less motivation. I just haven't felt some of the same moments of clarity and more energy as I had in Weeks 1-3. But today, I'm feeling moments of spring in my step! Actually, all day! The roller-coaster journey is real during the 100 days, for sure.
A few weeks ago, I started a slow body conditioning class and a gentle yoga class once per week. So, the good news is I have a little more energy to do these things! My yoga instructor even mentioned that he noticed improvement in my ability to get right in and hold the poses. The bad news is that this 40-year-old injured her back in the beginner body conditioning class trying to keep up with the 20-year-old limber instructor.
WORD OF CAUTION: Do not try to keep up with 20-year-olds during this time. I repeat. Do NOT try to keep up with 20-year-olds during this time! Remember "very gentle" exercise even when you think it's already gentle.
It ended up being the worst back injury I ever had: couldn't stand up and in excruciating pain. I was sure I slipped a disc. On top of it, I was so worried that this would hinder the delicate stem cell replicating process during the critical 100 days. I remember Dr. Phil saying that we need to keep stress and inflammation to a minimum during this time since the stems may go to the inflamed area and perhaps less will go toward replicating. We're supposed to take as little as possible in terms of medication or supplements during this time, but Dr. Kim said that short-term pain medication and muscle relaxers would be okay. Dr. Phil reassured me that this shouldn't hinder the process as the stem cells will still go to mobilizing our existing stem cells that are essentially "dormant" or "in reserve".
It's important to remember during this 1-year post-stem cell treatment period that the first 100 days (or 3-4 months) the body is busy replicating stem cells, which in more cases than not, seems to cause A LOT of ups-and-downs with symptoms as the body is trying to recalibrate. After the first 3-4 months, the stem cells should really get to work to repair and fight off infection and rebuild the immune system. We were told that neuro symptoms (my worst symptoms) may not see improvement until the 6-9 month period for many patients. I'm seeing some shifts already, but I'm crossing fingers and have my eye on the prize.
From a former patient who is now completely well for three years now and was one of the worst Lyme cases Infusio has seen. He gave me permission to post his inspiring message. Stay positive. Stay strong: