A LYME PATIENT'S JOURNEY TOWARD HEALING
I'll miss you, Infusio! What a kind and caring place. I will remember all the positivity from Infusio and the help getting me there! The following photo has been up on my fridge since I got home to help remind me of that positivity and that my stems are hard at work.
The First 100 Days
Although I was quite sore, the two days after the procedure I had more energy and had less brain symptoms. However, I crashed shortly thereafter. I am told that this is typical as the body is trying to adjust to the stems hard at work. The doc said give it a full year of allowing the stems to do their job. The first 100 days the stem cells are replicating approximately ten times every ten days, so the body is trying to recalibrate during this time and there could be a lot of ups and downs.
1 Week Post-Stems
Now that I'm 1-week post-stem, man, do I wish I could feel like the way I did during the 2 weeks at Infusio! I think I am feeling my body trying to figure out what is going on with these billions of replicating cells. Since being back home this week, I have felt more fatigue and brain fog and had feelings of depression/sadness. A few times, I had uncontrollable weepiness. I know this feeling isn’t “me”, but just my body trying to recalibrate. I am also noticing that my dry, inflamed eyes have flared up, making it pretty painful to keep them open. This happens a lot when my body is adjusting to a new medication or supplement, so it doesn’t surprise me that this symptom flared up. I have also felt periods of feeling edgy and irritable on top of the depression that is lingering. I'm guessing all of this could be hormones trying to adjust since I’m also noticing a major pimple break-out. Woot! Fun times.
However, despite some of these periods of increased symptoms, I have also felt periods of feeling more energy and feeling more positive. Yesterday, I went for TWO twenty-minute walks...in the heat and it felt great! I was also feeling a positive mood shift when just three hours prior I was a Crab-A-Saurus Rex.
I’m trying not to fall back into old routines. I live by myself, so this is a challenge especially since motivation and energy is low. My mom comes over 2 times per week to help out and she is continuing to do so. However, yesterday, I told her that I need motivation to get my body moving, so now we are making a point to walk around the block when she is here. I’m also looking into joining a gentle yoga class once per week, and hopefully, as things progress, I will look into physical therapy or a trainer. It’s hard to get my body moving, but I know I need to make this effort. I keep thinking that moving oxygen through the blood is so good for the cells!
I also need to keep up the positive energy that Infusio had while I was there. I know I need that sort of environment to thrive! I'm looking into working with a psychologist next to find those outlets in my life. But right now, I'm going to try to take a walk since I feel a tiny burst of energy while it lasts. Up and down.
For more information:
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